Our Vision

Closing gaps in Sickle Cell Disease care to improve the lives and outcomes of individuals and families affected by Sickle Cell Disease/Sickle Cell Trait through:

Networking - Connecting with other advoates and support groups within the Upstate New York Region and NYC

Sickle Cell is a disease most common in African-Americans, but also occurs in Hispanic, Mediterranean, Middle Eastern and Indian communities.

Rochester | Buffalo | Syracuse | Albany | New York City

​

Advocacy - Hosting awareness and educational campaigns to improve hospital, clinical, and community based advocacy through public and physician training on sickle cell treatments including the Transition to Adult Care Program

​

Research - Sharing clinical research trials and drug development advancments of current therapeutics

​

Fundraising - Providing a scholarship for young adults with SCD/SCT, promoting patient assistance programs or direct services Payers, improving sponsorship with donors

​

Legislative Advocacy - Supporting federal policy and legislation to shape public health policy and enable communities to be more engaged in current priorities

​